Sharecare4u Ghana

Share Care for You (Sharecare4u Ghana) is a support group for people in Ghana with rare neuroimmunologic conditions, including Transverse Myelitis, Acute Disseminated Encephalomyelitis (ADEM), Optic Neuritis, and Neuromyelitis Optica (Devic's disease) and Multiple Sclerosis.

Objectives include:

• Creating awareness about neuroimmunologic diseases
• Facilitating visits and meetings of people with rare neuroimmunologic conditions and their families
• Getting specialists to give educational talks to members
• Acting as an advocacy group to put pressure on local and national health authorities to treat neuroimmunologic diseases with the seriousness deserved in the national health care delivery system
• Advocacy for subsidized long-term drug treatment
• Advocating research into rare neuroimmunologic conditions and r aising funds for research
• Advocating proper implementation of the Disability Act of Ghana
• Networking with similar support groups worldwide
• Hosting a website for people with long-term illnesses to share their experiences and treatment options

Patrons:
Dr. Albert Akpalu
Dr. Nii Bonnie Andrews

Advisors:
Medical – Dr. Albert Akpalu
Media – A-R. Harruna Attah
Legal – Egbert Faibille

Coordinator:
Nana Yaa Agyeman
P.O. Box CT 4910
Cantonments
Accra
Ghana

Tel: 233-21 220084
Cell: 233-20 815 7404
email: sharecare4u@gmail.com
website: http://www.sharecare4u.org/