Journal Volume 3 - June 2008
Timothy A. Mulvihill
It is with great sadness, that the TMA announces that the founder of Devics-support, Timothy A. Mulvihill, has passed away.
Tim developed the Devics-support site in early 2006. His partner, Robert Keith Burden, had been stricken with Neuromyelitis Optica in early 2005, and Tim soon discovered that information about this rare disease was sparse. Tim was determined to change this, and embarked upon the task of educating himself in the technical aspects of the disease, reading anything and everything that he could get his hands on. He soon became one of the country’s most educated laypersons on the subject of Neuromyelitis Optica.
With the launching of the group, individuals affected with NMO finally had a place to discuss diagnosis, maintenance, and treatment options for this rare disease. Tim and his partner, Grace Miller, also began a campaign to get many of the internet sites to update their NMO information, thereby reflecting the true nature of this serious condition. They were very successful and Grace still continues in this effort.
Tim often stepped out to take responsibility for his members. He frequently arranged peer to peer consults, visits to the more prominent research facilities, sorted out insurance issues, and most importantly, lent his very strong shoulders to the weak. He was well loved by all of his members, and had wonderful offline friendships with many.
Devics-support continues on as a legacy to Tim's hard work and dedication. It has grown by leaps and bounds, and now provides support for members from all over the world.
He is deeply mourned by his partner, Robert Keith Burden, his mother, Marta, and siblings, John and Carrie.