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Transverse Myelitis Association
Volume 8 Issue 2

Article 4

Help Wanted: Keeping Our Membership Information Accurate

By doing something as simple as keeping your information accurate in our records, you are helping to save the TMA money; funds that can be used for research or to support symposia or the TMA Kid’s Camp.  The TMA uses a bulk postage rate for our mailings which results in considerable cost savings.  Unfortunately, with this method of mailing, we are not notified when an envelope is not delivered due to a bad address without incurring additional costs.   

In addition to asking people to take personal responsibility for keeping address, phone and email information updated and accurate, we are seeking help from our support groups in this important effort.  We currently have a number of support groups who regularly contact their membership in order to confirm the accuracy of their information.  For instance, the TM support groups in Germany, Italy, Scotland and the UK TM Society regularly check their membership information.  Please consider getting involved in this important activity!  If you have a flat rate long distance calling plan and internet access, you would be able to easily reach all of the members from your state or country to help verify their information.  You would be helping the TMA to save valuable resources, and you would be offered the wonderful opportunity to make connections with the very special people in our community.  As our international postage costs are so high, we have a critical need for this work to be done in our support groups outside of the United States.      

If you are a support group leader and are involved in a mailing to your state or country members, please be sure to let us know if you are made aware of any information changes.  You can send this information to Sandy Siegel at ssiegel@myelitis.org or to: 1787 Sutter Parkway, Powell, OH 43065-8806 USA.

If you are interested in helping us, please get in touch with Sandy Siegel or Debbie Capen at dcapen@myelitis.org or (951)658-2689.  Even if you do not have a support group in your state or country, but would like to help us with this work, please get in touch.  We would be grateful for your assistance.
 

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