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Privacy Statement for Transverse Myelitis Association

The Transverse Myelitis Association has created this privacy statement in order to demonstrate our firm commitment to privacy. The following discloses the information gathering and dissemination practices for this Web site: Transverse Myelitis Association

Information Automatically Logged

We use your IP address to help diagnose problems with our server and to administer our Web site.

Advertisers

We use an outside ad company to display ads on our site. These ads may contain cookies. While we use cookies in other parts of our Web site, cookies received with banner ads are collected by our ad company, and we do not have access to this information.

Registration Forms

Our membership registration form requires users to give us contact information (like their name, email, and postal address).

Contact information from the registration forms is used to send information about our organization. The member's contact information is also provided to other members in a directory to enable members to find support in their area.

Users may opt-out of receiving future mailings; see the choice/opt-out section below.

Surveys

Our online surveys ask visitors for contact information (like email address), and demographic information (like zip code, or age).

Users may opt-out of receiving future mailings; see the choice/opt-out section below.

Demographic and profile data is also collected at our site. We greatly appreciate your willingness to provide us with this very personal information. We believe that this information will ultimately help doctors better understand transverse myelitis and the people who have contracted this illness. We believe that this information will ultimately help our members.

External Links

This site contains links to other sites. The Transverse Myelitis Association is not responsible for the privacy practices or the content of such Web sites.

Public Forums

This site makes chat rooms, forums, message boards, and/or news groups available to its users. Please remember that any information that is disclosed in these areas becomes public information and you should exercise caution when deciding to disclose your personal information.

Supplementation of Information

This site supplements the information that you provide with information that is received from third parties. The Transverse Myelitis Association does not endorse any of the medications, treatments or products reported. This information is intended only to keep you informed. We strongly advise that you check any drugs or treatments mentioned with your personal physician.

Choice/Opt-Out

Our site provides users the opportunity to opt-out of receiving promotional/marketing information from us .

  1. You can send email to
  2. You can send mail to the following postal address:
    The Transverse Myelitis Association
    Sandy Siegel
    1787 Sutter Parkway
    Powell, OH 43065-8806
  3. You can call the following telephone number: (614) 766-1806

Data Quality/Access

This site gives users the following options for changing and modifying information previously provided:

  1. You can send email to membership[AT SIGN]myelitis[DOT]org
  2. You can send mail to the following postal address:
    The Transverse Myelitis Association
    Sandy Siegel
    1787 Sutter Parkway
    Powell, OH 43065-8806
  3. You can call the following telephone number: (614) 766-1806

Contacting the Web Site

If you have any questions about this privacy statement, the practices of this site, or your dealings with this Web site, you can contact:

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Copyright © 2007 The Transverse Myelitis Association. All rights reserved.
Document: http://myelitis.org/privacy.htm
Last Modified: Sunday, 18-Apr-2010 16:25:31 MST