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In Loving Memory of Pauline H. Siegel

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Be inspired by our Hope Ambassadors' stories

Our Goal: Hope

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2017 RARE NEURO-IMMUNE DISORDERS SYMPOSIUM

An education and advocacy conference for families, caregivers and individuals diagnosed with Acute Disseminated Encephalomyelitis (ADEM), Neuromyelitis Optica Spectrum Disorder (NMOSD), Optic Neuritis (ON), and Transverse Myelitis (including the subtype Acute Flaccid Myelitis)

REGISTER TODAY!

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The Transverse Myelitis Association Registry


The NIH/NCATS GRDR® Program
Global Rare Diseases Patient Registry Data Repository

Our TMA registry is a member of the GRDR program. Our de-identified data integration into GRDR will allow query by investigators to accelerate research across many rare diseases, which eventually may lead to the development of novel diagnostics and therapeutics for patient benefit.

Click here for more information about The TMA Registry

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NEWLY DIAGNOSED?

Read about diagnosis, treatment and managing symptoms

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ADVANCING RESEARCH

Dr. Olwen Murphy Receives the 2017-2019
James T. Lubin Fellowship Award

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CAPTURE

The first large-scale North-American study of pediatric transverse myelitis

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We are seeking over 100 patients to be followed via electronic surveys