2017 RARE NEURO-IMMUNE DISORDERS SYMPOSIUM
An education and advocacy conference for families, caregivers and individuals diagnosed with Acute Disseminated Encephalomyelitis (ADEM), Neuromyelitis Optica Spectrum Disorder (NMOSD), Optic Neuritis (ON), and Transverse Myelitis (including the subtype Acute Flaccid Myelitis)
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The Transverse Myelitis Association Registry
The NIH/NCATS GRDR® Program
Global Rare Diseases Patient Registry Data Repository
Our TMA registry is a member of the GRDR program. Our de-identified data integration into GRDR will allow query by investigators to accelerate research across many rare diseases, which eventually may lead to the development of novel diagnostics and therapeutics for patient benefit.
Click here for more information about The TMA Registry
ABOUT ACUTE FLACCID MYELITIS
Over the last few months, there has been an increase in new diagnoses of pediatric Acute Flaccid Myelitis (AFM). AFM is a condition causing damage to the spinal cord and generally presents with unique clinical and MRI features that are not typical of classical transverse myelitis.
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CAPTURE
The first large-scale North-American study of pediatric transverse myelitis
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We are seeking over 100 patients to be followed via electronic surveys
