Entries by The TMA

Our experience at the TMA Family Camp at CCK

Everyone in our family had been looking forward to TMA Family Camp ever since we found out our application had been accepted. Excitement grew as the days to camp got closer and we visited the website for the Center For Courageous Kids where the camp is held. We saw so many activities, pictures and videos that said TMA Family Camp was going to be awesome, so I wasn’t prepared for my very first reaction as we drove into the camp facility.

My Life With ADEM

It’s amazing. Things can happen to you when you don’t even know it.

Take ADEM, for instance.

It was an unexpected event. I was at my computer, typing an article for a soon-to-be published book, but when I read my words to myself, all they said was gibberish.

That event changed my life forever.

Depression and Rare Neuroimmune Diseases: Q&A with Dr. Lana Harder and Angie Fayad

Depression is a serious medical problem that causes a persistent feeling of sadness and loss of interest in activities. Studies have estimated that 6.6% of the U.S. adult population suffers from a depressive disorder, whereas about 2% of school-aged children and about 6 to 8% of adolescents in the United States have either major depression or other depressive disorders.

Thank you from the PA TMA Walk-Run-N-Roll Team

Pennsylvania’s TMA Walk-Run-N-Roll event was held on April 13, 2013 at South Park. It was a cool brisk morning with blue skies where you needed to wear extra layers- jackets, gloves and even blankets. Excitement was in the air! We were so pleased and blessed to welcome approximately 100 participants. Most were family and friends. One business, Opeka Auto Repair in McMurray, PA, joined us with five employees and donated…

A Passion for Speading the Word About Transverse Myelitis Grew from Years of Misdiagnosis

Why did I volunteer to start a TMA Walk-Run-N-Roll in Chicago? The short answer is anger. The long answer is a passion to educate and inform about transverse myelitis and related disorders.

Why anger? Because for 17 years I had a perfectly obvious transverse lesion on my spinal cord at C-5, but no one knew because no one bothered to look.

I went golfing after 3.5 Years

My name is Darlene Caterina, I’m 43 years old. On December 8th four years ago, I was paralyzed by Transverse Myelitis (TM). When I think back, it all seems like a bad dream. I was a very active, fit, fun, healthy, hyper, sweet spirited woman, so I ignored the scary symptoms that started a week before I was diagnosed with TM. The tops of my feet and back of my arms ached.

Let’s get the word out

I first learned about Transverse Myelitis and its life altering effects when my dad, Wayne Byerly, contracted the disease ten years ago this August. My story is really my dad’s story. His life story is rooted in strength, courage, and the undying hope of possibly a better tomorrow. This has always been his life theme, but has taken on an entirely new dimension, tested to its extreme, through the years of day-to day facing his opponent in Transverse Myelitis.