Entries by The TMA

Time – Reflections

I’ve been giving a lot of thought recently to time – or rather, our individual concepts of the passing of time. Before my first TM attack I had a very full working week . I was brought up in a household with both parents in full time employment and my mother, in particular, worked very […]

Tips and Tales from Board Member Barbara Sattler

Hi to all you who have won the rare neurological disease lottery!

This is the first in a series of blogs where we will discuss medical tips, share medical care horror stories and come up with ideas to help TMA raise money.

I’m not a medical professional nor have I played a doctor on TV. I am not providing medical advice. Check with your doctor before you change, add or subtract anything from your medical routine.

I invite all of you to send me your tips, which I will pass on.

Video of MasterChef winner Christine Ha living with NMO

Christine Ha was diagnosed with NMO in 2003. As many other people suffering from rare neuroimmunologic disorders, she was struggling with her condition and often lost hope. However, through her passion for cooking and the help of family and friends she managed to fight for herself and her dreams. Through her perseverance, strength and positive energy she became the first blind contestant on the hit reality TV show, MasterChef.

Pacing

You would think that after nearly seven years, I would have managed to absorb the fact that I need to “pace” myself every day to make sure that my energy levels don’t get used up in one fell swoop. Somehow, though, the message doesn’t seem to have got through.

Postal Glitches Impact the TMA in 2012

We want to make our members and supporters aware that for a few months in 2012, we experienced some delivery issues with our postal mail. It is unclear at this time if this is the result of post office negligence or improper activity by a person or persons. This problem was discovered early January 2013. We were contacted by members who advised us that their check donations by mail were not cashed.

The power of advocacy

My life with TM started one day in October 1989, when my dad had to take my brother and I to go pick up our mother at the mechanic shop. Over the next couple of days I was falling a lot and crawling around the house. My parents took me to a couple of different doctors since I was complaining of pain in my legs. It was believed I was simply regressing as a psychological reaction to entering kindergarten.