TMA Blog

Join our Podcast on NMO Studies and Clinical Trials: What Should I Know?

What are the various studies and clinical trials in NMO? How do these different drugs work? What is their mechanism of action? How do I know which one is right for me? How does a clinical trial benefit me? What is a placebo-controlled trial? What if I have an exacerbation during the study? What happens when the study is over?These and more questions will be addressed during our Podcast tomorrow!

Announcing the 3rd Annual JHTMC Transverse Myelitis Symposium

The 3rd Annual JHTMC Transverse Myelitis Symposium will be held on Saturday, June 20th at 9:00 am at the Arcade Conference Center, located at the Johns Hopkins Hospital (1800 Orleans Street, Zayed 2117, Baltimore, MD).Patients and caregivers will have the opportunity to meet with practitioners and other patients in an effort to learn more about their disease, symptom management, patient advocacy, standard-of-care and ongoing investigations into new treatments. Research opportunities will also be available to those who are interested.

You Can and Should Dream Big!

My favorite question to ask our teenagers in the TM and NMO clinic is “What do you want to be when you grow up?” This provokes a wide array of answers, from teacher to CSI agent to rocket scientist. Helping our teenagers identify how to reach their goals despite their disability is one of my passions.

Coming Home

Coming home was a moment of both joy and caution. For the first time in almost two months, Rita and I would be together again under the same roof. We could hug and kiss and talk endlessly and effortlessly once more.