Understanding Experiences with Vaccination Before and After a Rare Neuroimmune Disorder

Principal Investigator: Sanford Siegel, PhD and Gabrielle deFiebre, MPH

The goal of the study is to understand and learn from The TMA member community about their experiences with receiving vaccinations before and after a rare neuroimmune disorder diagnosis, with a focus on their experiences after diagnosis. The study involves participation in a survey administered using Surveymonkey and through postal mail.

This study is being conducted in two parts. The first part is a random sample of 600 members of the TMA. Once the random sample has been recruited, we will open enrollment to all members of the TMA.

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