Loading Events

« All Events

2017 Rare Neuro-Immune Disorders Symposium

October 20 @ 7:00 am, EST - October 21 @ 5:30 pm, EST

An education and advocacy conference for families, caregivers and individuals diagnosed with Acute Disseminated Encephalomyelitis (ADEM, Neuromyelitis Optica Spectrum Disorder (NMOSD), Optic Neuritis (ON), and  Transverse Myelitis (including the subtype Acute Flaccid Myelitis)


Hosted by



Early bird registration begins in February 2017


Welcome to the 2017 Rare Neuro-Immune Disorders Symposium where we will learn about these rare neuro-immune disorders, and examine what the future will look like in five years for individuals and families affected by Acute Disseminated Encephalomyelitis (ADEM, Neuromyelitis Optica Spectrum Disorder (NMOSD), Optic Neuritis (ON), and Transverse Myelitis (including the subtype Acute Flaccid Myelitis).

This conference, hosted by The Transverse Myelitis Association (TMA), The Johns Hopkins Transverse Myelitis Center (JHTMC) and NMO Clinic, The University of Texas Southwestern Medical Center (UTSW) and Children’s Medical Center CONQUER Program, is dedicated to the exchange of information regarding diagnosis, research, and treatment strategies, and to providing an opportunity to bring together the community of individuals diagnosed with these rare neuro-immune disorders, families, caregivers, and the medical professionals who have interest and are specializing in these disorders.

OBJECTIVES

  1. Gather an understanding of the knowledge to date on the biology and causes of rare neuro-immune disorders (TM, NMOSD, AFM, ADEM, and ON) and how they relate to each other
  2. Learn about the latest medical and surgical strategies to manage the symptoms associated with these chronic rare neuro-immune disorders
  3. Gain knowledge on current and future basic science research and clinical studies that will improve the quality of life of our community

AUDIENCE

This conference is open to all individuals diagnosed with ADEM, NMOSD, ON, and TM, including AFM, their families and caregivers. Medical professionals interested in these disorders are also welcome to attend.

2017 OHIO WALK-RUN-N-ROLL EVENT

The Transverse Myelitis Association is committed to building a supportive community of individuals diagnosed with ADEM, NMOSD, TM (including AFM) and raising awareness and funds to support research and education. The 2nd Annual OH Walk-Run-N-Roll Event will be held on Sunday, October 22, 2017 at Coffman Park Pavilion in Dublin, OH. The event is as an opportunity for our community to come together to share stories, experiences, and form lasting relationships all while increasing awareness of these rare neuro-immune disorders and raising funds that will allow the TMA to continue providing much needed educational programs like the RND Symposium and supporting research.

All are welcome to join.

Please indicate your interest to attend the walk when you register for the symposium, and we will send you an event registration confirmation with more details.

Click here for more information.


Registration Fees

Discounted fees are available for members of The TMA. Please note that membership to the TMA is free. We encourage all individuals diagnosed with a rare neuro-immune disorder, caregivers, relatives and medical professionals to sign up here.

* Children under 12 years of age can attend the symposium at no cost

Agenda

Friday October 20, 2017

 7:00-9:00 am                        Breakfast and Registration

9:00- 9:15 am                         Welcome and Goals of the 2017 RNDS

9:15-10:15 am                          What Are Rare Neuro-Immune Disorders?

10:15-10:30 am                        BREAK

10:30-12:00 pm                       Workshop Sessions on the Diagnosis and Treatment of Rare Neuro-immune Disorders

Session 1: Transverse Myelitis

Session 2: Acute Flaccid Myelitis

Session 3: Neuromyelitis Optica Spectrum Disorder and Optic Neuritis

Session 4: Acute Disseminated Encephalomyelitis                                           

12:00-1:00 pm                     Lunch

1:00-1:45 pm                        Recognizing and Treating Neuropathic Pain

1:45-2:15 pm                         Managing Fatigue in Rare Neuro-Immune Disorders

2:15-3:00 pm                        Bladder, Bowel, and Sexual Dysfunction in Rare Neuro-immune Disorders

3:00-3:15 pm                        BREAK

3:15-4:00 pm                        Understanding Depression and Cognitive Function

4:00- 4:45 pm                      Rehabilitation in Rare Neuro-Immune Disorders

4:45-5:15 pm                        Open Forum for Questions and Answers

5:30-8:00 pm                     Dinner Reception

Saturday October 21, 2017

7:30-9:00 am                        Breakfast

9:00 -10:15 am                      Small group workshop sessions I (select one topic in each session)

10:15-10:45 am                      Break

10:45-12:00 pm                     Small group workshop sessions II

SGWS I

Depression and Cognitive Dysfunction

SGWS V

Neuropathic Pain

SGWS II

Bowel, Bladder, and Sexual Dysfunction

SGWS VI

Alternate therapies

 

SGWS III

Rehabilitation

SGWS VII

Transition from Adolescents to young adults

SGWS IV

Managing your Care and Support for Caregivers

SGWS VIII

Pediatric-specific issues

12:00-1:00 pm                     Lunch

1:00-3:00 pm                       Research and Future of Rare Neuro-immune Disorders

3:00-3:20 pm                       Break

3:20-5:15 pm                        Research and Future of Rare Neuro-immune Disorders

5:15-5:30                               Closing

Hotel Info

Hilton Columbus at Easton
Easton Town Center
3900 Chagrin Dr
Columbus, OH 43219

5.3 miles from Port Columbus International Airport

Complimentary shuttle from airport to hotel

A limited block of accessible and regular rooms is available at a nightly rate of $189 plus 17.5% taxes until September 19, 2017. Reservations require a first night’s room and tax deposit with each individual reservation. If guests wish to upgrade to a standard Easton view room, they can do so for an additional $10.00 per room, per night. Guests can also upgrade to the Executive Floor for an additional $30.00 per room, per night. Individuals cancelling their reservations must do so by 4pm the day prior to their scheduled arrival date, or it will result in a charge of one night’s room and tax to the individual’s credit card.

Reservations must be made by calling the hotel directly at 614-414-5000 and asking for the “TMA Symposium” room block rate, or through the online group reservations link.

Sponsorship
Contact Us

info@myelitis.org
+1 (855) 380-3330

Timi Schrumpf
tschrumpf@myelitis.org


Video recordings of all presentations will be available for viewing on our website.


Think people should hear about this?

Details

Start:
October 20 @ 7:00 am, EST
End:
October 21 @ 5:30 pm, EST
Event Category:

Venue

Hilton Columbus at Easton
3900 Chagrin Dr
Columbus, OH 43219 United States
+ Google Map