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2018 Regional RNDS

October 27 @ 8:00 am, EDT - 5:30 pm, EDT

An education and advocacy conference for families, caregivers and individuals diagnosed with Acute Disseminated Encephalomyelitis (ADEM), MOG Antibody-Associated Disease (MOG-ab disease), Neuromyelitis Optica Spectrum Disorder (NMOSD), Optic Neuritis (ON), and Transverse Myelitis (including the subtype Acute Flaccid Myelitis)


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Welcome to the 2018 Regional Rare Neuro-Immune Disorders Symposium for Acute Disseminated Encephalomyelitis (ADEM), MOG Antibody-Associated Disease (MOG-ab disease), Neuromyelitis Optica Spectrum Disorder (NMOSD), Optic Neuritis (ON), and Transverse Myelitis (TM) (including the subtype Acute Flaccid Myelitis).

This conference hosted by The Transverse Myelitis Association (TMA) and Boston Children’s Hospital Center for Pain and The Brain is dedicated to the exchange of information regarding diagnosis, research and treatment strategies and to providing an opportunity to bring together the community of individuals diagnosed with these rare neuro-immune disorders, families, caregivers and the medical professionals who have interest and are specializing in these disorders.

OBJECTIVES

  1. Gather an understanding of the knowledge to date on the biology and causes of rare neuro-immune disorders and how they relate to each other
  2. Learn about the latest medical and surgical strategies to manage the symptoms associated with these chronic rare neuro-immune disorders

AUDIENCE

This conference is open to all individuals diagnosed with rare neuro-immune disorders, their families and caregivers. Medical professionals interested in these disorders are also welcome to attend.


Agenda

Saturday, October 27, 2018

8:00-9:00 am

Breakfast and Registration

9:00-9:15 am

Welcome
Nadia Barakat, PhD | Boston Children’s Hospital

9:15–9:45 am

Understanding Transverse Myelitis
Leslie Benson, MD | Boston Children’s Hospital

9:45-10:15 am

Acute Flaccid Myelitis
Benjamin Greenberg, MD, MHS | University of Texas Southwestern and Children’s Medical Center

10:15-10:45 am

Neuromyelitis Optica Spectrum Disorder and Optic Neuritis
Michael Levy, MD, PhD | The Johns Hopkins University School of Medicine

10:45-11:00 am

Break

11:00-11:30 am

Acute Disseminated Encephalomyelitis
Mark Gorman, MD | Boston Children’s Hospital

11:30-12:00 pm

Anti-Myelin Oligodendrocyte Glycoprotein (MOG) and NMOSD
Tanuja Chitnis, MD | Harvard Medical School

12:00-1:00 pm

Lunch

1:00-1:30 pm

Updates from The Transverse Myelitis Association
Gabrielle (GG) deFiebre, MPH | The Transverse Myelitis Association
Rebecca Whitney | The Transverse Myelitis Association

1:30-2:45 pm

Panel on Symptom Management
Moderated by Elisa Holt | TMA Community Ambassador
Farrah J. Mateen, MD, PhD | Massachusetts General Hospital
Christine N. Sang, MD, MPH | Brigham and Women’s Hospital
Christine Sieberg, PhD | Boston Children’s Hospital
Benjamin Greenberg, MD, MHS | University of Texas Southwestern, Children’s Medical Center
Mark Gorman, MD | Boston Children’s Hospital
Leslie Benson, MD | Boston Children’s Hospital
Michael Levy, MD, PhD | The Johns Hopkins University School of Medicine

2:45-3:15 pm

Rehabilitation and Recovery
Jenna Elie, DPT | Northeast Arc Early Intervention

3:15-3:30 pm

Break

3:30-3:50 pm

Updates in Remyelination Strategies
Benjamin Greenberg, MD, MHS | University of Texas Southwestern and Children’s Medical Center

3:50-4:10 pm

Imaging and Rare Neuro-immune Disorders
Nadia Barakat, PhD | Boston Children’s Hospital
Robert Barry, PhD | Massachusetts General Hospital

4:10-4:30 pm

Genetics of Familial Transverse Myelitis
Michael Levy, MD, PhD | The Johns Hopkins University School of Medicine

4:30-5:20 pm

Q & A – Open Session

5:20-5:30 pm

Closing remarks

© The Transverse Myelitis Association and Boston Children’s Hospital’s Center for Pain and The Brain take responsibility for the content of this education activity. This schedule is subject to change.

Register here



About The Center for Pain and the Brain

The Center for Pain and the Brain is a multidisciplinary team comprised of leading neurologists, physician-scientists, psychologists, physicists and neurobiologists. Founded and directed by David Borsook MD PhD, the Center spans Harvard Medical School, Boston Children’s Hospital, Massachusetts General Hospital and McLean Hospital. Our research focuses on the discovery of novel pain pathways, developing novel high-throughput methods for evaluating analgesics, and incorporating results from animal research into human applications. We are one of the few Centers that evaluates both pediatric and adult patient groups. Conducting neuroimaging studies in both acute and chronic pain cohorts as well as experimental pain in healthy volunteers, we seek to transform and improve the field of pain medicine.

Hotel

Please visit this link for a list of hotels near Boston Children’s Hospital: http://tma.ong/2Hb1x06

Sponsorship
Contact Us

info@myelitis.org
+1 (855) 380-3330

SPONSORS


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Details

Date:
October 27
Time:
8:00 am, EDT - 5:30 pm, EDT
Event Category:

Venue

The Joseph B. Martin Conference Center at Harvard Medical School
77 Avenue Louis Pasteur
Boston, MA 02115 United States
+ Google Map

Details

Date:
October 27
Time:
8:00 am, EDT - 5:30 pm, EDT
Event Category:

Venue

The Joseph B. Martin Conference Center at Harvard Medical School
77 Avenue Louis Pasteur
Boston, MA 02115 United States
+ Google Map