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Educational Support Services: Understanding IEPs and 504 Plans for Students Diagnosed with TM (including AFM), ADEM, and NMOSD

October 20, 2015, EST @ 1:00 pm, EST - 2:00 pm, EST

2015 ASK THE EXPERT PODCAST SERIES SPONSORED BY



Chugai Pharmaceutical Co, Ltd  is conducting clinical studies to create original and innovative drugs, both in the USA and overseas, to address unmet medical needs in neurological disorders, where the level of pharmaceutical contribution and satisfaction concerning patient treatment remains low.



Alexion is a global biopharmaceutical company focused on serving patients with severe and rare disorders through the innovation, development and commercialization of life-transforming therapeutic products. Their goal to deliver medical breakthroughs where none currently exist is driven by the knowledge that people’s lives depend on their work. 

* The Executive Committee of the TMA with the medical and scientific council determines the content and topics of the podcasts. Sponsors are not able to influence the education program.




*  Please note that we have just launched our new website. If you are receiving any error messages, please contact us at info[at]myelitis.org. Thank you for your patience.



Join us to learn more about accessing educational support services through Individualized Education Programs (IEPs) and 504 plans for students diagnosed with rare neuro-immune disorders – ADEM, NMOSD, and TM (including AFM).

  • What are these plans? How are they related and how are they different?
  • Are there resources available to help me customize a plan for my child?
  • What are some of the key considerations as I prepare for the new school year?
  • Do I really need formal help with learning and attention issues?
  • How does a diagnosis of TM, NMOSD, or ADEM affect learning and attention?
  • What types of modifications and/or accommodations should I be advocating for?
  • Will I qualify for support services in college?

If you have specific questions for our experts on this topic, please send them to us via email at [email protected] (Subject: Podcast) and please join us!

During the podcast, you can interact with the speakers and the moderator through our TMA Facebook page, or using the GoToWebinar “raise your hand” feature for asking questions.



About Our Guest Speakers



Lana_HarderDr. Lana Harder

Assistant Professor at UT Southwestern Medical Center, Department of Psychiatry, Neurology and Neurotherapeutics, Dallas, TX


Dr. Lana Harder completed her doctoral training at the University of Texas in Austin, Texas and completed her pre-doctoral internship at the Kennedy Krieger Institute and Johns Hopkins School of Medicine in Baltimore, Maryland.  She completed her post-doctoral fellowship in Pediatric Neuropsychology at Texas Children’s Hospital and Baylor College of Medicine in Houston, Texas.  Since 2008, Dr. Harder has served as a Clinical Neuropsychologist at Children’s Medical Center Dallas (CMCD) and as Assistant Professor of Psychiatry and Assistant Professor of Neurology and Neurotherapeutics at the University of Texas Southwestern Medical Center.  She is board certified in Clinical Neuropsychology and specializes in the neuropsychological evaluation of pediatric patients, from infancy to young adults, with disorders of the central nervous system.  Dr. Harder serves as the neuropsychologist for the CMCD Pediatric Demyelinating Diseases Clinic.  Research interests include cognitive and psychosocial outcomes for pediatric multiple sclerosis (MS), transverse myelitis (TM), acute disseminated encephalomyelitis (ADEM), clinically isolated syndrome (CIS), and neuromyelitis optica (NMO).

 


Forber-PrattAnjali Forber-Pratt, PhD



Anjali J. Forber-Pratt, Ph.D. is an Assistant Professor at the Department of Human & Organizational Development at Vanderbilt University. Her research agenda adopts a social-ecological framework and looks at issues surrounding identity, equity and empowerment through methodology for individuals who are different in some way, with a large focus on disability. She completed her degrees the University of Illinois.

Outside of the academy, Dr. Forber-Pratt was also a member of Team USA at the 2008 and 2012 Paralympic Games.  As a Paralympic medalist in the sport of wheelchair racing, she has dedicated her life to helping others recognize their potential. Dr. Forber-Pratt acquired transverse myelitis as an infant. She helps to develop and further Paralympic sport in developing nations and is actively involved in the world of disability sport across the United States. Dr. Forber-Pratt co-authored an educational kids’ coloring book about disabled sports titled, “Color Learn & Play: All About Sports for Athletes with Physical Disabilities”.

The American Association of People with Disabilities (AAPD) has also recognized her leadership abilities by awarding her the prestigious 2013 Paul G. Hearne Leadership Award, given to emerging leaders within the national disability community.  Dr. Forber-Pratt has appeared on several television programs and radio shows including: NPRThe Stream; and Sesame Street; and has been quoted in the national print press, including The Boston Globe, New York Times, Huffington PostUSA Today, and Runner’s World. She was honored by the White House as a Champion of Change in 2013 and had an opportunity to participate in a roundtable discussion with President Obama about disability policy issues.


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Details

Date:
October 20, 2015, EST
Time:
1:00 pm, EST - 2:00 pm, EST
Event Category:

Venue

The Transverse Myelitis Association
Powell, United States