March is MOGAD Awareness Month. To shine a light on MOG antibody disease (MOGAD) and the journeys of all those diagnosed with this rare disorder and their loved ones, we will be sharing stories, resources, facts, and helpful tips during the entire month of April.
Join us at the 2024 Southwest Walk-Run-N-Roll (WRNR) on Saturday, April 20, 2024! Organized by SRNA volunteers Julie Barry and Kate Krietor, the WRNR will take place Gene C. Reid Park in Tucson, Arizona. This event benefits individuals and families affected by rare neuroimmune disorders: acute disseminated encephalomyelitis (ADEM), acute flaccid myelitis (AFM), MOG antibody disease (MOGAD), […]
Please join us for an online support group meeting, hosted by Emily, our Sibling Support Group Leader! This group is for siblings aged 18 years or older of individuals diagnosed with ADEM, AFM, MOGAD, NMOSD, ON, or TM.
Join us for a virtual Volunteer Meet & Greet in celebration of National Volunteer Week! If you've been curious about volunteering with SRNA, this is a great opportunity to meet current volunteers and hear about their experiences with the organization in a relaxed and informal setting. If you can't attend but have questions about getting […]
Please join us for an online support group meeting, hosted by Andrew, one of our Young Adult Support Group Leaders! Come connect with others and discuss what it’s like living with a rare neuroimmune disorder. Ask questions, share your stories, or just listen – everyone is welcome.
May is ADEM Awareness Month. To shine a light on Acute Disseminated Encephalomyelitis (ADEM) and the journeys of all those diagnosed with this rare disorder and their loved ones, we will be sharing stories, resources, facts, and helpful tips during the entire month of May.
To RSVP for the event please click here. If you are having issues registering please contact Rebecca Whitney at [email protected].
Please join us for an online support group meeting hosted by Darlene, our Michigan Support Group Leader! Come connect with others and discuss what it’s like living with a rare neuroimmune disorder. Ask questions, share your stories, or just listen – everyone is welcome.
Join us at the 2024 West Coast Walk-Run-N-Roll (WRNR) on Sunday, May 5, 2024! Organized by SRNA volunteers Philip Rive and Lena Loquellano, the WRNR will take place at Monte Verde Park in Lakewood City, California. This event benefits individuals and families affected by rare neuroimmune disorders: acute disseminated encephalomyelitis (ADEM), acute flaccid myelitis (AFM), MOG antibody […]
Learn more about Acute Disseminated Encephalomyelitis, connect with others in the rare neuroimmune disorders community, and raise awareness for ADEM! No matter where you are in the world, we invite you to join us.
