I was admitted to the hospital after a lumbar puncture and a night in the ER. They moved me to a room I would live in for three weeks. University of Wisconsin Medical Center doctors that worked on my case consisted of neurology, infectious disease, and rheumatology specialists. As the days and tests went by, each department left my case, leaving only neurology. I was a real mystery to them. They sent my case to other research hospitals for answers and causes. Days turned into weeks, and I still had no diagnosis. We had pages of negative test results. In the middle of week two, they started steroids and intravenous immunoglobulin (IVIG) hoping to decrease the inflammation. I was told I had inflammatory myelitis. With no cause, I was a special case. I was discharged from the hospital and transferred to an intensive inpatient rehabilitation facility. I worked three hours a day with physical therapy (PT) and occupational therapy (OT). My husband, parents, and friends took turns visiting me, nourishing me with outside food and bringing fresh laundry. I was discharged 4 weeks later in a wheelchair.
The most challenging part of living with Transverse Myelitis is not having a clear-cut path to a cure. I am working hard in therapy, but I still experience physical limitations. I returned to work five months after diagnosis with a walker and now use a cane on occasion.