My story starts over 6 years ago. I was a healthy 48-year-old female with a medical background. At the start of my illness, I was experiencing headaches, high/low blood pressure and body aches, and my doctor first thought this was related to perimenopause. After four months, I noticed high levels of fatigue combined with pain around the chest, which then moved primarily to the joint areas. My doctor Suzanne Gibbons and I had worked together in the past, so she found it strange with my frequent appointments. Upon the review of my chart she asked if I had ever been bitten by a tick. My response was “No,” then she asked, “Have you seen a bullet or circle area?” Again, the response was “no.” With my symptoms still not adding up, she decided to do a Lyme Disease Test. I laughed knowing it would be negative. When the results came in, I was surprised to hear a positive result. This was puzzling since I didn’t remember visiting any place where I could have been bitten. I was treated numerous times with the appropriate medication for Lyme Disease; things were looking up and I was feeling better.
Fast forward two years when, out of the blue, symptoms of a migraine and fever started. It seemed like the flu, so off to the ER I went. I was treated and then sent home. I’d been home for a few hours when around 2 am I had the urge to use the bathroom. Well, when I got out of bed my entire body went through tremors. I was unable to walk, and I had no movement on my entire right side. I thought I was having a stroke, so I went back to the ER. Doctors there went down the long list of testing: MRI, CAT scan, bloodwork etc. My symptoms were increasing – migraine, increased blood pressure, severe back pain in the spine that felt like someone lit a match and left it there to stay. I was on at least 7-8 medications including IV steroids. After a week of being hospitalized, scans, a spinal tap, inpatient/outpatient rehab, and being out of work for 3 months, that was it!! No answers of how or why this happened.