Johns Hopkins Neuromyelitis Optica Patient Day

The Johns Hopkins Neuromyelitis Optica Patient Day will be held on Sunday, October 5th at 9:30 am at the Chevy Chase Conference Room, located at the Johns Hopkins Hospital (1800 Orleans Street, Zayed 2119, Baltimore, MD).

NMO patients and caregivers will have the opportunity to meet with practitioners and other patients in an effort to learn more about their disease, symptom management, patient advocacy, standard-of-care and ongoing investigations into new treatments. Research opportunities will also be available to those who are interested. You can view the agenda below for more details!

While the event is free to all, space is limited and availability is first-come, first served. If you’re interested in attending the event, please RSVP via the following this link in advance and no more than one additional guest per NMO patient may attend. We ask that you let us know if you need to cancel. Please note that the Orleans garage is conveniently situated across the street from the hospital between Wolfe & Broadway, and the Zayed pedestrian bridge on the 4th floor of the garage links to the Main Level of the hospital for safe and easy access. Food will be provided.

Please join the Johns Hopkins Neuromyelitis Optica Clinic team for a day of education, research, and interaction with fellow NMO patients… plus a little bit of fun!

 

 

NMO Patient Day Agenda

9:30 am-10:00 am
Registration & Breakfast

 

10:00 am-10:15 am
Michael Levy, MD, PhD
Welcome & Opening Remarks

 

10:15 am-10:35 am
Michael Levy, MD, PhD
Introduction to NMO

 

10:35 am-10:45 am
Q&A

 

10:45 am-11:05 am
Maureen A. Mealy, RN, BSN
Symptom Management in NMO

 

11:05 am-11:15 am
Q&A

 

11:15 am-11:30 am
Break

 

11:30 am-12:00 pm
Marcello Matiello, MD
Treatment in NMO

 

12:00 pm-12:15 pm
Q&A

 

 

12:15 pm-1:45 pm
Breakout Lunch Sessions

 

Neuropsychiatric Aspects of NMO
Adam Kaplin, MD, PhD

 

Critical Issues in Neurorehabilitation
Daniel Becker, MD | Kathleen Zackowski, PhD

 

Pain Management in NMO
Jatin Joshi, MD

 

Bowel and Bladder
Janet Dean, CRNP

 

Sexual Dysfunction
Karen Boyle, MD

 

 

 

1:45 pm-2:00 pm
Maureen A. Mealy, facilitator
Patient Advocacy

 

2:00 pm-3:00 pm
Michael Levy, facilitator
Clinical Trials Update

 

3:00 pm-3:30 pm
Talent show

 

3:30 pm
Michael Levy
Closing Remarks & Adjourn

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