Myelitis Helpline Survey

You have reached the Myelitis Helpline, an online tool that was developed by The Siegel Rare Neuroimmune Association to answer your questions about our organization and rare neuroimmune disorders, such as acute disseminated encephalomyelitis, acute flaccid myelitis, MOG antibody disease, neuromyelitis optica spectrum disorder, optic neuritis, and transverse myelitis.

The information on this site is provided for general information purposes and should not be relied on as a substitute for professional medical advice, care, treatment or for diagnosis. Do not change your medication or regime without talking to your doctor first.

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Question Title

1. What is the diagnosis you or your family member has been given?

Acute Disseminated Encephalomyelitis or ADEM

Neuromyelitis Optica Spectrum Disorder (NMOSD) or Devic’s Disease

Optic Neuritis

Transverse Myelitis

Acute Flaccid Myelitis

MOG Antibody Disease

Clinically Isolated Syndrome or suspected Multiple Sclerosis

Multiple Sclerosis

Spinal Stroke or AVM/Vascular Myelopathy

Radiation Myelopathy

No diagnosis has yet been given

I do not have a rare neuroimmune disorder

Other (please specify)

Question Title

2. Do you have any of the following conditions?

Systemic lupus erythematosus or Lupus

Sjogren's Syndrome

Sarcoidosis or Neurosarcoidosis

HIV

Lyme Disease

TSP/HAM - HTLV-1 Associated Myelopathy/Tropical Spastic Paraparesis

I do not have any of these conditions