2010 Rare Neuroimmune Disorders Symposium
September 24 – 26 2010 | Dallas, Texas
Sponsored by The Siegel Rare Neuroimmune Association, UT Southwestern Department of Neurology and the Office of Continuing Medical Education
Welcome and Introduction
Benjamin Greenberg, MD, MHS | University of Texas Southwestern Medical Center and Children’s Medical Center Dallas
Sandy Siegel, PhD | The Siegel Rare Neuroimmune Association
Overview of Neuroimmunologic Disorders
Angela Bates, MD | University of Texas Southwestern Medical Center
Immunology Primer for the Non-Immunologist
James Bowen, MD, Swedish Medical Center
Distinguishing Pediatric TM from ADEM and CIDP: Clinical and Genetic Aspects
Gregory Barnes, MD, PhD | Vanderbilt University
Neuromyelitis Optica
Michael Levy, MD, PhD | Johns Hopkins University School of Medicine
Pediatric Multiple Sclerosis
Donna Graves, MD | University of Texas Southwestern Medical Center
Treating Acute Inflammation
Dean Wingerchuk, MD | Mayo Clinic
Jacinta Behne, MA | Greater Good Foundation
The ACP Repository: A Research Resource for Demyelinating Diseases
Hollie Schmidt | Accelerated Cure Project
The Role of a Grass Roots Organization in Rare Diseases: SRNA Story
Sandy Siegel, PhD | The Siegel Rare Neuroimmune Association
Management of Neuropathic Pain
Thomas Abraham, RN | University of Texas Southwestern Medical Center
The Neuroimmunology of Depression
Adam Kaplan, MD, PhD | John Hopkins University School of Medicine
Bladder Dysfunction in Multiple Sclerosis
Gary Lemack, MD | University of Texas Southwestern Medical Center
Sexual Dysfunction
Wanda Castro-Borrero, MD | University of Texas Southwestern Medical Center
Heat Intolerance in Multiple Sclerosis
Elliot Frohman, MD, PhD | University of Texas Southwestern Medical Center
Spasticity Management
Janet Dean, RN, Kennedy Krieger Institute
Cognitive Changes in Demyelinating Disease
Lana Harder, PhD | University of Texas Southwestern Medical Center and Children’s Medical Center Dallas
How to Manage Your Care Team
Maureen Mealy, RN | Johns Hopkins University School of Medicine
Exercise and Therapy & Activity-Based Therapy
Daniel Becker, MD | Kennedy Krieger Institute
Power Assist Wheels
Charles Levy, MD | University of Florida
The Stem Cell Horizon: Where Are We?
Michael Levy, MD, PhD, Johns Hopkins
Moderated Panel Discussion Part 1 Topics
Differences in inflammatory response
Migration of embryonic stem cells
NMO–confusion with MS
NMO attack-acute emergency procedures-plasma exchange or not
Therapy escalation
TM emergency room procedures
Getting TM emergency procedures out to Dr.s everywhere
Moderated Panel Discussion Part 2 Topics
Drugs vs. Rehab
Rehab vs. Therapy-differences
Misdiagnosis situations
MD lack of training in Neurological disease
Neurologist’s lack of experience with TM, NMO etc.
Methods to judge success of treatment
Moderated Panel Discussion Part 3 Topics
Rehabilitation
Exercise vs. therapy
NMO treatment
Very young patient diagnosis-problems
TM changing to MS
Motivating young patients to do therapy
