2010 Rare Neuro-Immune Disorders Symposium

September 24 – 26 2010 | Dallas, Texas

Sponsored by The Transverse Myelitis Association, UT Southwestern Department of Neurology and the Office of Continuing Medical Education

Welcome and Introduction
Benjamin Greenberg, MD, MHS | University of Texas Southwestern Medical Center and Children’s Medical Center Dallas
Sandy Siegel, PhD | The Transverse Myelitis Association

Overview of Neuroimmunologic Disorders
Angela Bates, MD | University of Texas Southwestern Medical Center

Immunology Primer for the Non-Immunologist
James Bowen, MD, Swedish Medical Center

Transverse Myelitis: A Primer for Patients and Non-Neurologists
Carlos Pardo, MD | Johns Hopkins University School of Medicine

Distinguishing Pediatric TM from ADEM and CIDP: Clinical and Genetic Aspects
Gregory Barnes, MD, PhD | Vanderbilt University

Neuromyelitis Optica
Michael Levy, MD, PhD | Johns Hopkins University School of Medicine

Pediatric Multiple Sclerosis
Donna Graves, MD | University of Texas Southwestern Medical Center

Treating Acute Inflammation
Dean Wingerchuk, MD | Mayo Clinic

Immunosuppressants and Immunomodulation for Prevention
Erik Von Burton, MD | University of Texas Southwestern Medical Center
Integration of Alternative Therapy
Joanne Lynn, MD | Ohio State University
The Genetics of Autoimmunity
Brian Weinshenker, MD | Mayo Clinic
Beyond Genetics, The Epidemiology of Autoimmunity
Benjamin Greenberg, MD, MHS | University of Texas Southwestern Medical Center and Children’s Medical Center Dallas
Creating a Home for NMO: The Guthy Jackson Charitable Foundation
Katja Van Herle, MD, MSPH | Greater Good Foundation
Jacinta Behne, MA | Greater Good Foundation

The ACP Repository: A Research Resource for Demyelinating Diseases
Hollie Schmidt | Accelerated Cure Project

The Role of a Grass Roots Organization in Rare Diseases: The TMA Story
Sandy Siegel, PhD | The Transverse Myelitis Association

Management of Neuropathic Pain
Thomas Abraham, RN | University of Texas Southwestern Medical Center

The Neuroimmunology of Depression
Adam Kaplan, MD, PhD | John Hopkins University School of Medicine

Bladder Dysfunction in Multiple Sclerosis
Gary Lemack, MD | University of Texas Southwestern Medical Center

Sexual Dysfunction
Wanda Castro-Borrero, MD | University of Texas Southwestern Medical Center

Heat Intolerance in Multiple Sclerosis
Elliot Frohman, MD, PhD  | University of Texas Southwestern Medical Center

Spasticity Management
Janet Dean, RN, Kennedy Krieger Institute

Cognitive Changes in Demyelinating Disease
Lana Harder, PhD | University of Texas Southwestern Medical Center and Children’s Medical Center Dallas

How to Manage Your Care Team
Maureen Mealy, RN | Johns Hopkins University School of Medicine

Exercise and Therapy & Activity-Based Therapy
Daniel Becker, MD | Kennedy Krieger Institute

Power Assist Wheels
Charles Levy, MD | University of Florida

How Rare Neuro-Immune Diseases Teach Us About More Common Relatives
Lawrence Steinman, MD, PhD | Stanford University
2010 TMA Distinguished Service Award

The Stem Cell Horizon: Where Are We?
Michael Levy, MD, PhD, Johns Hopkins

Moderated Panel Discussion Part 1 Topics
Differences in inflammatory response
Migration of embryonic stem cells
NMO–confusion with MS
NMO attack-acute emergency procedures-plasma exchange or not
Therapy escalation
TM emergency room procedures
Getting TM emergency procedures out to Dr.s everywhere

Moderated Panel Discussion Part 2 Topics
Drugs vs. Rehab
Rehab vs. Therapy-differences
Misdiagnosis situations
MD lack of training in Neurological disease
Neurologist’s lack of experience with TM, NMO etc.
Methods to judge success of treatment

Moderated Panel Discussion Part 3 Topics
Rehabilitation
Exercise vs. therapy
NMO treatment
Very young patient diagnosis-problems
TM changing to MS
Motivating young patients to do therapy

Moderated Panel Discussion Part 4 Topics
TM and Vaccinations
New MS medicine available in October
Problems diagnosing children in ER
How to Prepare to see a new Doctor
Developmental problems of children with neurological disease
Think people should hear about this?