The TMA is proud to be partners with the below organizations. Through these partnerships we hope to provide increased care, treatment, and research for rare neurological disorders.
The Johns Hopkins Transverse Myelitis Center was the first center in the US and the world dedicated to the diagnosis, clinical management and research of transverse myelitis. A team of neurologists, rehabilitation specialists, neuropsychiatrists, neurosurgeons, neuro-ophthalmologists, therapists and other scientists facilitate the evaluation and management of patients affected by transverse myelitis.
The UT Southwestern Multiple Sclerosis and Neuroimmunology Division encompasses clinical programs for patients, clinical research, and basic science programs. Their clinical programs treat adult and pediatric patients with multiple sclerosis, transverse myelitis, neuromyelitis optica, acute disseminated encephalomyelitis, optic neuritis, and other autoimmune conditions of the nervous system. Their mission is to provide exceptional care for patients, accelerate clinical and basic science research, and educate current and future care practitioners.
The Johns Hopkins Project RESTORE was established in August 2004 as a collaborative multidisciplinary effort to advance the understanding of neuroimmunologic disorders and develop new therapies. Project RESTORE stives to restore hope, restore function and restore the lives of patients and families suffering with transverse myelitis or multiple sclerosis. This project funds researchers to work together to discover new biological indicators of neuroimmunologic diseases, develop new imaging strategies, and conduct clinical trials to support the creation of progressive treatments.
A national nonprofit organization dedicated to accelerating advances towards a cure for multiple sclerosis (MS) and other neuroimmunologic disorders. ACP provides biomedical researchers with the resources they need to catalyze open scientific collaboration and enable them to rapidly and cost-effectively explore their novel research ideas. ACP’s strategic initiatives include the Multiple Sclerosis Discovery Forum, an information portal and interactive virtual community that educates and connects MS investigators, and the ACP Repository, a large-scale collection of highly-characterized biosamples available to scientists at any organization conducting research that contributes to our mission.
The Cody Unser First Step Foundation is a global not-for-profit organization dedicated to raising research funds, public awareness and quality of life for those afflicted with all forms of spinal cord paralysis. The Foundation also focuses on the cause, rehabilitation, prevention and cure for Transverse Myelitis.
The TM Society, started in 2004, is a registered charity in England and Wales, with over 1000 members. All members of the worldwide TM Association living in UK are automatically members of TM Society as well. The aim of the society is to offer support and information to all those who may have, or know someone with Transverse Myelitis and its associated conditions such as NMO (Devic’s Disease), ADEM and others. The TM Society provides support via Support Group meetings held around the country, and have held UK TM Conferences which have included world-class speakers and leaders in their fields.
Spinal Injuries Australia is a Quality Assured, not-for-profit, membership-based organisation, representing 2,000 members and clients around the state of Queensland, Australia with offices in Brisbane and Townsville. The vision of the organization is That people with a spinal cord injury are able to live in an equitable, inclusive, integrated community, independently able to access every aspect of and contribute to the fabric of their region. 2010 marked an enormous milestone for the Association – a celebration of 50 years of working hard to give people a voice – to ensure that people with a spinal cord injury have the opportunity to be heard by all sectors of the community with the aim of achieving equity, independence and inclusiveness.
The Pediatric Demyelinating Disease Program at Children’s Medical Center Dallas offers comprehensive outpatient and inpatient care for children affected by a variety of rare autoimmune conditions. We are one of only two comprehensive Transverse Myelitis Programs in the world, and we have been treating patients since 2009.
The International Center for Spinal Cord Injury (ICSCI) at Kennedy Krieger Institute was founded on the philosophy that individuals with paralysis can always hope for recovery of sensation, function, mobility, and independence, months and even years after injury. To maximize on this potential for recovery, ICSCI offers an intense, medically-supervised therapy program with a unique focus on Activity-Based Restorative Therapy.