Loading Events

← Back to Events

The Transverse Myelitis Association

+ Google Map
Powell, United States

October 2015, EDT

Educational Support Services: Understanding IEPs and 504 Plans for Students Diagnosed with TM (including AFM), ADEM, and NMOSD

October 20, 2015, EDT @ 1:00 pm, EDT - 2:00 pm, EDT
The Transverse Myelitis Association Powell, United States

Join us to learn more about accessing educational support services through Individualized Education Programs (IEPs) and 504 plans for students diagnosed with rare neuroimmune disorders – ADEM, NMOSD, and TM (including AFM).

Find out more »

November 2015, EDT

Bowel, Bladder, and Sexual Dysfunction in TM, NMOSD, and ADEM

November 30, 2015, EDT @ 1:00 pm, EDT - 2:00 pm, EDT
The Transverse Myelitis Association Powell, United States

2015 ASK THE EXPERT PODCAST SERIES SPONSORED BY Chugai Pharmaceutical Co, Ltd  is conducting clinical studies to create original and innovative drugs, both in the USA and overseas, to address unmet medical needs in neurological disorders, where the level of pharmaceutical contribution and satisfaction concerning patient treatment remains low. Alexion is a global biopharmaceutical company focused on serving patients with severe and rare disorders through the innovation, development and commercialization of life-transforming therapeutic products. Their goal to deliver medical breakthroughs…

Find out more »

December 2015, EDT

Our Lives: Our Stories

December 16, 2015, EDT @ 1:00 pm, EDT - 2:00 pm, EDT
The Transverse Myelitis Association Powell, United States

Join our Podcast on December 16th!

Find out more »

January 2016, EDT

Diagnosing TM, NMO and ADEM

January 27, 2016, EDT @ 2:00 pm, EDT - 3:00 pm, EDT
The Transverse Myelitis Association Powell, United States

A diagnosis of TM, NMO or ADEM involves a complex series of tests, understanding the clinical and radiological findings and the history of onset of symptoms. Why are these disorders difficult to diagnose, what tests are required to arrive at an accurate diagnosis, how do diagnosticians differentiate between these disorders and between these disorders and MS.

Find out more »

February 2016, EDT

Comprehensive Management of Neuropathic Pain

February 24, 2016, EDT @ 1:00 pm, EDT - 2:00 pm, EDT
The Transverse Myelitis Association Powell, United States

*  Please note that we have just launched our new website. If you are receiving any error messages, please contact us at infomyelitis.org. Thank you for your patience. What is neuropathic pain? What causes it? What are the medical and surgical treatments commonly used? Are there alternative therapies that work? Is this chronic pain? How do I manage rehabilitative therapy with neuropathic pain? If you have questions about management of neuropathic pain after a diagnosis of a rare neuroimmune disorder, please email…

Find out more »

March 2016, EDT

Ask the Expert Podcast – The Power of Sharing Stories

March 31, 2016, EDT
The Transverse Myelitis Association Powell, United States

Medical professionals are not the only experts in rare neuroimmune disorders. Following a diagnosis of TM including AFM, NMOSD, and ADEM, individuals, families, and caregivers become experts, advocate for their own health and well-being, share their stories, and shape their futures. Join Courtney Robinson from Texas and Elisa Holt from Massachusetts as they share their journeys and lessons learnt as mothers of sons diagnosed with a subtype of Transverse Myelitis called Acute Flaccid Myelitis. Email us at info@myelitis.org with your…

Find out more »

May 2016, EDT

Learning About Acute Disseminated Encephalomyelitis

May 19, 2016, EDT @ 12:00 pm, EDT - 1:00 pm, EDT
The Transverse Myelitis Association Powell, United States

What is ADEM?  What causes it? What are the recommended treatments commonly used? Does it affect children and adults? What are the symptoms?  Does one recover fully? If you have questions about acute disseminated encephalomyelitis, a rare neuroimmune disorder, please email them to info@myelitis.org.  Our experts will answer your questions. During the podcast, you can interact with the moderator to ask questions through the chat function using the GoToWebinar feature. About Our Guest Speakers Benjamin M. Greenberg, MD, MHS Associate…

Find out more »

June 2016, EDT

Open Forum on TM including AFM, NMOSD, ON and ADEM

June 21, 2016, EDT @ 1:00 pm, EDT - 2:00 pm, EDT
The Transverse Myelitis Association Powell, United States

With TMA James T. Lubin Fellowship Recipients Dr. Allen DeSena | University of Cincinnati and Cincinnati Children’s & Dr. Michael Sweeney | University of Utah Do you have questions about treatment of TM, AFM, NMOSD, ADEM, or about management of the symptoms with these disorders?  Do you have questions about the long-term effects and prognosis after a diagnosis of a rare neuroimmune disorder? Please join The TMA James T. Lubin Fellows to learn about the current state of clinical care…

Find out more »

July 2016, EDT

Back-to-School Preparation for Students with Demyelinating Diseases: Legal and Neuropsychological Perspectives

July 12, 2016, EDT @ 12:00 pm, EDT - 1:00 pm, EDT
The Transverse Myelitis Association Powell, United States

Join The TMA’s “Ask the Expert” Podcast Series On Back-to-School Preparation for Students with Demyelinating Diseases: Legal and Neuropsychological Perspectives With Lana Harder, PhD, ABPP | University of Texas Southwestern | Children’s Medical Center Dallas & Susan Schoppa, JD | Medical-Legal Partnership for Children | Dallas Legal Aid of NorthWest Texas | University of Texas Southwestern   On July 12, 2016 at 12 pm Eastern Time Do you have questions about school-related issues for students with disabilities as you plan…

Find out more »

September 2016, EDT

Podcast – Understanding Types of Research in ADEM, NMOSD, and TM, including AFM

September 29, 2016, EDT @ 12:00 pm, EDT - 1:00 pm, EDT
The Transverse Myelitis Association Powell, United States

Do you have questions about the types of research being conducted in TM, NMOSD, and ADEM? Do you want to learn more about current and upcoming research opportunities? Do you want to know what we’ve learned from research on these disorders? Do you have questions for our experts?

Find out more »

October 2016, EDT

Podcast – Sexual function and quality of life after a diagnosis of ADEM, NMOSD and TM

October 27, 2016, EDT @ 1:00 pm, EDT - 2:00 pm, EDT
The Transverse Myelitis Association Powell, United States

Join us for our TMA’s “Ask the Expert” Podcast Series on sexual function and quality of life after a diagnosis of ADEM, NMOSD and TM.

Find out more »

November 2016, EDT

Special Podcast – Understanding Acute Flaccid Myelitis

November 16, 2016, EDT @ 2:30 pm, EDT - 3:30 pm, EDT
The Transverse Myelitis Association Powell, United States

Join us for a podcast on Acute Flaccid Myelitis with Dr. Benjamin Greenberg on November 16th, 2016 at 2:30 pm Eastern Time to learn more and ask your questions.

Find out more »

Podcast – Contraception, pregnancy, delivery and child care after a diagnosis of ADEM, NMOSD and TM

November 21, 2016, EDT @ 1:00 pm, EDT - 2:00 pm, EDT
The Transverse Myelitis Association Powell, United States

Join us for a podcast on Contraception, pregnancy, delivery and child care after a diagnosis of ADEM, NMOSD and TM.

Find out more »

December 2016, EDT

Podcast – Quality of Life in a Wheelchair

December 19, 2016, EDT @ 1:00 pm, EDT - 2:00 pm, EDT
The Transverse Myelitis Association Powell, United States

Join us for a podcast on Quality of Life in a Wheelchair.

Find out more »

January 2017, EDT

Podcast – Building a multidisciplinary team for complex care after a diagnosis of ADEM, NMOSD, ON, and TM (including AFM)

January 19, 2017, EDT @ 2:00 pm, EDT - 3:00 pm, EDT
The Transverse Myelitis Association Powell, United States

Join us for our TMA’s “Ask the Expert” Podcast Series on building a multidisciplinary team for complex care after a diagnosis of ADEM, NMOSD, TM (including AFM)

Find out more »

February 2017, EDT

Podcast – Vaccinations and rare neuroimmune disorders

February 22, 2017, EDT @ 3:30 pm, EDT - 4:30 pm, EDT
The Transverse Myelitis Association Powell, United States

SEND US YOUR QUESTIONS FOR THE EXPERTS HERE (During the podcast, you can interact with the moderator through our TMA Facebook page, or using the chat function in GoToWebinar) Teri L. Schreiner, MD, MPH Assistant Professor of Neurology at University of Colorado   Dr. Schreiner is a neuroimmunology specialist and pediatric neurologist at the University of Colorado and Children’s Hospital Colorado. She sub-specializes in pediatric onset demyelinating disorders of the central nervous system and haes begun a multi-disciplinary clinic for children with these disorders.…

Find out more »

March 2017, EDT

Podcast – Managing your health after a rare neuroimmune diagnosis

March 21, 2017, EDT @ 1:00 pm, EDT - 2:00 pm, EDT
The Transverse Myelitis Association Powell, United States

SEND US YOUR QUESTIONS FOR THE EXPERTS HERE (During the podcast, you can interact with the moderator through our TMA Facebook page, or using the chat function in GoToWebinar) About our Guest Speakers Paula Hardeman, MPAS, PA-C   Paula Hardeman is a Physician Assistant and the Lead Advance Practice Provider in the Neuroimmunology Program at UT Southwestern Medical Center. She graduated from Texas A&M University with a Bachelor of Science degree in Biomedical Science and received her Master of Physician Assistant Studies…

Find out more »

April 2017, EDT

Podcast – The Role of Nutrition in Managing Your Health

April 18, 2017, EDT @ 1:00 pm, EDT - 2:00 pm, EDT
The Transverse Myelitis Association Powell, United States

SEND US YOUR QUESTIONS FOR THE EXPERTS (During the podcast, you can interact with the moderator through our TMA Facebook page, or using the chat function in GoToWebinar) * The Executive Committee of the TMA with the medical and scientific council determines the content and topics of the podcasts. Sponsors are not able to participate in or influence the education program. Listen to previous Ask the Expert podcasts here. Guest Speakers Tad Campbell, MCN, RD, LD University of Texas Southwestern Medical Center…

Find out more »

May 2017, EDT

Open Forum on Transverse Myelitis, including Acute Flaccid Myelitis

May 25, 2017, EDT @ 3:00 pm, EDT - 4:00 pm, EDT
The Transverse Myelitis Association Powell, United States

SEND US YOUR QUESTIONS FOR THE EXPERTS HERE (During the podcast, you can interact with the moderator through our TMA Facebook page, or using the chat function in GoToWebinar) About our Guest Speakers Sarah Hopkins, MD, MSPH Cynthia Wang, MD Cynthia Wang is an autoimmune neurology fellow at University of Texas Southwestern Medical Center, supported by the TMA’s James T. Lubin clinician-scientist fellowship award. She completed a pediatric neurology residency at the University of Michigan where she developed interest in rare neuro-immunological disorders…

Find out more »

June 2017, EDT

Open Forum on Neuromyelitis Optica Spectrum Disorder

June 21, 2017, EDT @ 1:00 pm, EDT - 2:00 pm, EDT
The Transverse Myelitis Association Powell, United States

SEND US YOUR QUESTIONS FOR THE EXPERTS HERE (During the podcast, you can interact with the moderator through our TMA Facebook page, or using the chat function in GoToWebinar) About our Guest Speakers Maureen Mealy, RN, BSN, MSCN Maureen Mealy is a Clinical Program Manager at Johns Hopkins Transverse Myelitis Center and Neuromyelitis Optica Clinic in Baltimore, MD. Maureen is a certified Clinical Neuroscience Registered Nurse and a Multiple Sclerosis Certified Nurse. She has longstanding experience in neurosciences as she began her…

Find out more »

September 2017, EDT

How to get the most out of your appointments: Physician and patient perspectives with Dr. Greenberg and Kristin Smith

September 25, 2017, EDT @ 1:00 pm, EDT - 2:00 pm, EDT
The Transverse Myelitis Association Powell, United States

SEND US YOUR QUESTIONS FOR THE EXPERTS HERE (During the podcast, you can interact with the moderator through our TMA Facebook page, or using the chat function in GoToWebinar) About our Guest Speakers Benjamin M. Greenberg, MD, MHS Dr. Benjamin Greenberg received his Bachelor of Arts degree from Johns Hopkins University and his Masters Degree in Molecular Microbiology and Immunology from the Johns Hopkins School of Public Health in Baltimore, Maryland. He attended medical school at Baylor College of Medicine in Houston,…

Find out more »

November 2017, EDT

How to manage and cope with grief

November 21, 2017, EDT @ 1:00 pm, EDT - 2:00 pm, EDT
The Transverse Myelitis Association Powell, United States

SEND US YOUR QUESTIONS FOR THE EXPERTS HERE (During the podcast, you can interact with the moderator through our TMA Facebook page, or using the chat function in GoToWebinar) About our Guest Speakers Sandra J. King, MSSW, LCSW Sandra King is a licensed clinical social worker in the Neurology Department at UT Southwestern Medical Center. She graduated from Stephen F. Austin State University with a Bachelor of Fine Arts degree in Art Education, with a minor in English, and received her Master…

Find out more »

December 2017, EDT

Rheumatological conditions and ADEM, NMOSD, TM and ON

December 11, 2017, EDT @ 1:30 pm, EDT - 2:30 pm, EDT
The Transverse Myelitis Association Powell, United States

SEND US YOUR QUESTIONS FOR THE EXPERTS HERE (During the podcast, you can interact with the moderator through our TMA Facebook page, or using the chat function in GoToWebinar) About our Guest Speakers Julius Birnbaum, MD, MHS Dr. Julius Birnbaum graduated magna cum laude from Princeton University and received his M.D. from Columbia College of Physicians and Surgeons. He completed his Residency in Neurology at Mount Sinai Medical Center, New York, a Residency in Internal Medicine at Jacobi Medical Center, Bronx, NY,…

Find out more »

January 2018, EDT

Stem cells as a treatment for rare neuroimmune disorders

January 23, 2018, EDT @ 1:00 pm, EDT - 2:00 pm, EDT
The Transverse Myelitis Association Powell, United States

SEND US YOUR QUESTIONS FOR THE EXPERTS HERE (During the podcast, you can interact with the moderator through our TMA Facebook page, or using the chat function in GoToWebinar) About our Guest Speakers Jaime Imitola, MD Dr. Jaime Imitola is Director of the Progressive Multiple Sclerosis Multidisciplinary Clinic and Translational Research Program, and an Assistant Professor in the Department of Neuroscience and Neurology at The Ohio State University Wexner Medical Center in Columbus, Ohio. Dr. Imitola received his medical degree from Universidad…

Find out more »

March 2018, EDT

Alternative therapies for the treatment of rare neuroimmune disorders

March 1, 2018, EDT @ 12:00 pm, EDT - 1:00 pm, EDT
The Transverse Myelitis Association Powell, United States

Join us for a podcast on Alternative therapies as treatment for rare neuroimmune disorders! The podcast will take place on March 1st, 2018 at 12:00pm EST.

Find out more »

Understanding and managing spasticity

March 22, 2018, EDT @ 12:00 pm, EDT - 12:45 pm, EDT
The Transverse Myelitis Association Powell, United States

SEND US YOUR QUESTIONS FOR THE EXPERTS HERE (During the podcast, you can interact with the moderator through our TMA Facebook page, or using the chat function in GoToWebinar) About our Guest Speakers Philippines Cabahug, M.D. Dr. Philippines Cabahug earned her B.S. in physical therapy at the University of the Philippines in 1994, and her medical degree at St. Luke’s-WHQ Memorial, Philippines in 2000. She completed a physical medicine and rehabilitation (PM&R) residency at the Philippine General Hospital in 2005. She was…

Find out more »

April 2018, EDT

Aging with rare neuroimmune disorders

April 23, 2018, EDT @ 2:00 pm, EDT - 3:00 pm, EDT
The Transverse Myelitis Association Powell, United States

Join us for a podcast on Aging with rare neuroimmune disorders! The podcast will take place on April 23rd, 2018 at 2:00pm EST.

Find out more »

May 2018, EDT

Diagnostic markers for rare neuroimmune disorders

May 25, 2018, EDT @ 1:00 pm, EDT - 2:00 pm, EDT
The Transverse Myelitis Association Powell, United States

Join us Friday, May 25th at 1:00pm ET for a podcast on Diagnostic markers for rare neuroimmune disorders. To register and submit your questions for the experts, view the event page!

Find out more »

June 2018, EDT

Navigating Life After A Rare Neuroimmune Disorder: Social Security, Benefits, Assistive Technology, and More

June 22, 2018, EDT @ 1:00 pm, EDT - 2:00 pm, EDT
The Transverse Myelitis Association Powell, United States

Join us Friday, June 22nd at 1:00pm ET for a podcast on Navigating Life After A Rare Neuroimmune Disorder: Social Security, Benefits, Assistive Technology, and More.

Find out more »

What is MOG Antibody-Associated Disease?

June 27, 2018, EDT @ 11:00 am, EDT - 12:00 pm, EDT
The Transverse Myelitis Association Powell, United States

Join us Wednesday, June 27th at 11:00am ET for a podcast on MOG Antibody-Associated Disease.

Find out more »

July 2018, EDT

A conversation with the TMA James T. Lubin Fellows

July 31, 2018, EDT @ 12:00 pm, EDT - 1:00 pm, EDT
The Transverse Myelitis Association Powell, United States

Join us for a TMA Ask the Expert Podcast titled "A conversation with the TMA James T. Lubin Fellows" on Tuesday, July 31st at 12:00pm ET. Visit the event page to register for the podcast and submit questions for the medical experts.

Find out more »

August 2018, EDT

Research 101: Finding, Reading, and Understanding Research

August 22, 2018, EDT @ 12:00 pm, EDT - 1:00 pm, EDT
The Transverse Myelitis Association Powell, United States

Join us Wednesday, August 22nd at 12:00pm ET for a Podcast on Research 101: Finding, Reading, and Understanding Research. Register and submit questions to the experts by clicking the event link .

Find out more »

September 2018, EDT

Air Travel with a Disability: Your Rights, Best Practices, and Suggestions

September 18, 2018, EDT @ 12:00 pm, EDT - 1:00 pm, EDT
The Transverse Myelitis Association Powell, United States

Join us Tuesday, September 18th, 2018 for a podcast on Air Travel with a Disability: Your Rights, Best Practices, and Suggestions. View the event for more information on how to register and submit questions for our experts.

Find out more »

October 2018, EDT

What You Need to Know about Caregiving

October 15, 2018, EDT @ 12:00 pm, EDT - 1:00 pm, EDT
The Transverse Myelitis Association Powell, United States

Please join us Monday, October 15th at 12:00pm for a podcast on What you Need to Know about Caregiving. Visit the event page to register and submit your questions for the experts!

Find out more »

2018 Podcast on Acute Flaccid Myelitis

October 17, 2018, EDT @ 3:00 pm, EDT - 4:00 pm, EDT
The Transverse Myelitis Association Powell, United States

Please join us Wednesday, October 17th for a Special Podcast on Acute Flaccid Myelitis. Visit the event page to register and submit questions for the experts, Dr. Benjamin Greenberg and Dr. Carlos Pardo-Villamizar.

Find out more »

December 2018, EDT

Pregnancy and Rare Neuroimmune Disorders

December 13, 2018, EDT @ 1:00 pm, EDT - 2:00 pm, EDT
The Transverse Myelitis Association Powell, United States

Please join us Thursday, December 13th for a podcast on "Pregnancy and Rare Neuroimmune Disorders." We will be joined by medical experts Dr. Michael Levy and Dr. Benjamin Greenberg. Register and submit your questions using the links on the event page.

Find out more »

January 2019, EDT

Autoimmune Encephalitis and Rare Neuroimmune Disorders

January 17 @ 2:00 pm, EDT - 3:00 pm, EDT
The Transverse Myelitis Association Powell, United States

Please join us Thursday, January 17th, 2019 for a podcast on Autoimmune Encephalitis and Rare Neuroimmune Disorders. We will be joined by medical experts Dr. Michael Bradshaw and Dr. Tracey Cho. Visit the event page to register and submit questions for our experts.

Find out more »

March 2019, EDT

Pediatric MOG Antibody-Associated Disease and ADEM

March 20 @ 12:00 pm, EDT - 1:00 pm, EDT
The Transverse Myelitis Association Powell, United States

Join us Wednesday, March 20th at 12:00pm EST for a podcast on Pediatric MOG Antibody-Associated Disease and ADEM. Visit the event page to register and submit questions for the experts.

Find out more »

April 2019, EDT

Relapsing vs Monophasic Rare Neuroimmune Disorders

April 11 @ 3:00 pm, EDT - 4:00 pm, EDT
The Transverse Myelitis Association Powell, United States

Please join us Thursday, April 11th, 2019 at 3:00pm for a podcast on Relapsing vs Monophasic Rare Neuroimmune Disorders. To register and submit questions for the experts, please visit the event page.

Find out more »

Managing Adult Urological Issues

April 22 @ 5:30 pm, EDT - 6:30 pm, EDT
The Transverse Myelitis Association Powell, United States

Please join us Monday, April 22nd at 5:30pm ET for a podcast on Managing Adult Urological Issues. To register and submit questions for the experts, visit the event page.

Find out more »

Quality of Life: Mindset and Healthy Habits

April 23 @ 3:00 pm, EDT - 4:00 pm, EDT
The Transverse Myelitis Association Powell, United States

Please join us Tuesday, April 23rd at 3:00pm ET for a podcast on Quality of Life: Mindset and Healthy Habits. Register and submit questions for the experts by visiting the event page.

Find out more »

May 2019, EDT

Parents’ Perspectives on AFM

May 15 @ 10:30 am, EDT - 11:30 am, EDT
The Transverse Myelitis Association Powell, United States

Please join us Wednesday, May 15, 2019 at 10:30am ET for a podcast on Parents' Perspectives on AFM. Visit the event page to register and submit questions for the experts.

Find out more »

Managing Pediatric Urological Issues

May 20 @ 12:00 pm, EDT - 1:00 pm, EDT
The Transverse Myelitis Association Powell, United States

Please join us Monday, May 20th at 12:00pm ET for a podcast on Managing Pediatric Urological Issues. To register and submit questions to the experts, please visit the event page.

Find out more »

Quality of Life: Adaptive Driving

May 24 @ 12:00 pm, EDT - 1:00 pm, EDT
The Transverse Myelitis Association Powell, United States

Please join us Friday, May 24th at 12:00pm ET for a podcast on Quality of Life: Adaptive Driving. Register and submit questions for the experts by visiting the event page.

Find out more »

June 2019, EDT

Q&A on Study to Investigate the Safety of the Transplantation of Human Glial Restricted Progenitor Cells Into Subjects With Transverse Myelitis

June 19 @ 2:30 pm, EDT - 3:30 pm, EDT
The Transverse Myelitis Association Powell, United States

Please join us Wednesday, June 19th at 12:00pm ET for a podcast on The Q Study - Q&A on Study to Investigate the Safety of the Transplantation of Human Glial Restricted Progenitor Cells Into Subjects With Transverse Myelitis. Register and submit questions for the experts on the event page.

Find out more »

Managing Neuropathic Pain and Paresthesia

June 19 @ 6:00 pm, EDT - 7:00 pm, EDT
The Transverse Myelitis Association Powell, United States

Please join us Wednesday, June 19th at 6:00pm ET for a podcast on Managing Neuropathic Pain and Paresthesia. Register and submit questions for the experts by visiting the event page.

Find out more »
+ Export Events