The Transverse Myelitis Association (TMA) has created this privacy statement in order to demonstrate our firm commitment to privacy. To safeguard your privacy, we have adopted the following privacy policy for this Web site: The Transverse Myelitis Association

Normal website usage

The TMA has a strong commitment to Internet privacy. You can visit all portions of our site without revealing your identity or any personal information.

Information automatically logged

We use your IP address to help diagnose problems with our server and to administer our Web site.


Like most websites, the TMA may place a cookie, or small file, in the browser files of a visitor’s computer. We do not use cookies to track your movement among different web sites and do not exchange cookies with other entities.

Collection of personally identifiable information

Our membership registration form powered by TraitWise asks users to give us contact information (like their name, email, and postal address) and information about their health.

Contact information from the registration forms is used to send information about our organization. The member’s contact information is shared with other members and support group leaders only if users have opted for sharing.

Users may opt-out of receiving future mailings; see the choice/opt-out section below.


Our online surveys ask visitors for contact information (like email address), and demographic information (like zip code, or age).

Demographic and profile data is also collected at our site. We greatly appreciate your willingness to provide us with this very personal information. We believe that this information will ultimately help doctors better understand rare neuro-immunologic disorders and the people who have been diagnosed with them. We believe that this information will ultimately help our members.

The information shared with us will not be made public at any time without your permission.  Data we collect maybe analyzed as de-identified data and only aggregate results reported and used to learn more about the disease and make reasonable conclusions about the population that may be helpful in designing registries and clinical trials. The TMA does not share or sell patient data and other confidential information with third parties for any purpose.

Users may opt-out of receiving future mailings; see the choice/opt-out section below.

Confidentiality of User Information

The TMA does not sell, exchange or otherwise disclose user information outside the organization.

External Links

This site contains links to other sites. The Transverse Myelitis Association is not responsible for the privacy practices or the content of such Web sites. We encourage you to review the privacy policy of each site you visit.

Public Forums

This site makes chat rooms, forums, message boards, and/or news groups available to its users. Please remember that any information that is disclosed in these areas becomes public information and you should exercise caution when deciding to disclose your personal information.

Additional Information

This site supplements information that we provide with information that is received from third parties. The Transverse Myelitis Association does not endorse any of the medications, treatments or products reported. This information is intended only to keep you informed. We strongly advise that you check any drugs or treatments mentioned with your personal physician.


Our site provides users the opportunity to opt-out of receiving newsletters and other mailing from us by sending an email to [email protected] or unsubscribing from the electronic mailing list.

Data Access

This site gives users the option to view their information by logging in using their username and password and also to change and modify information previously provided by emailing [email protected]

Privacy Policy Changes

We will post any changes to our privacy policy on this website.

Contacting the Web Site

If you have any questions about this privacy statement, the practices of this site, or your dealings with this Web site, you can contact us [email protected]